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La maladie de Hirschsprung (HSCR) touche des milliers d'enfants ainsi que leurs familles travers le monde. Avec de belles illustrations et travers le regard de Pierre son grand frre, ce livre raconte l'histoire d'Henri qui est atteint de cette maladie. Tour tour le lecteur va tout apprendre sur HSCR, son diagnostic et ses traitements mais aussi, avec la famille d'Henri, dcouvrir la gestion du quotidien. Il verra combien la maladie peut affecter la famille mais aussi renforcer les liens.

Mon petit frre a la maladie de Hirschsprung

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