Thriving with a rare disorder

WellBeing reader Tessa Koller shares experiences of living with a rare disorder and what it takes to thrive in the digital era.

Words TESSA KOLLER

At first glance, nobody can tell all the struggles I’ve endured in an era that is all about image. While genetic disorders affect individuals in rare cases, intellectual disabilities, depression and anxiety occur most frequently in men and women. These conditions are only some of the health issues I regularly face. In retrospect, I shouldn’t be alive given the battles I’ve fought and health challenges that have nearly ended my life. I’m one of those unlucky few who has dozens of medical diagnoses with numerous compounding symptoms. I live with a rare genetic syndrome known as 22Q11.2 deletion syndrome, also known as DiGeorge syndrome. Get to know 22Q11.2 deletion syndrome 22Q11.2 deletion syndrome is caused by a microdeletion of the 22nd chromosome and is next door to Down syndrome. Within recent years, women…

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WellBeing (Digital) - 1 Issue, Issue 203

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