Schwannomatosis. Not a word that's in most people's vocabulary, but for many years it defined my life until I decided to turn the tables. An extremely rare genetic disorder that causes uncontrollable pain, the disease could have broken me. Instead, it became the making of who I am today. If you've ever been at a point in your life where chronic pain has become overwhelming, whether physical or emotional, this book is for you. In candidly telling my story, I walk you through the darkest valleys and share my secrets for not only surviving pain but thriving in it. When I emerged at long last into the sun, you will have the tools to do the same.
Schwannomatosis. Not a word that's in most people's vocabulary, but for many years it defined my life until I decided to turn the tables. An extremely rare genetic disorder that causes uncontrollable pain, the disease could have broken me. Instead, it became the making of who I am today. If you've ever been at a point in your life where chronic pain has become overwhelming, whether physical or emotional, this book is for you. In candidly telling my story, I walk you through the darkest valleys and share my secrets for not only surviving pain but thriving in it. When I emerged at long last into the sun, you will have the tools to do the same.
