Printed in color.
Lewy body dementia (LBD) is a complex and challenging brain disorder. LBD is characterized by the presence of Lewy bodies in the brain and cognitive decline that worsens over time. LBD also affects other parts of the body and bodily functions in ways that scientists are trying to understand more fully. LBD's many possible symptoms make it hard to do everyday tasks that once came easily.
Although less is known about LBD than other forms of dementia, it is not a rare disorder. LBD has two forms - dementia with Lewy bodies and Parkinson's disease dementia. Although they have some differences, the two forms are related. Most people living with either form of the disorder are older adults, and they experience disabling changes in their ability to think and move due to the disorder.
There is currently no cure for LBD. While researchers seek better ways to treat and cure the disorder, people with LBD and their families continue to face challenges to get an accurate
diagnosis, find the best treatments, and manage at home and in their communities.
This booklet is meant to help people living with LBD, their families, caregivers, and professionals learn more about the disease and find resources for coping. It explains what is known about the different forms of LBD and how they are diagnosed. Most importantly, it describes how to treat and manage this difficult disease, with practical advice for both people with LBD and their caregivers. A list of resources begins on page 46.